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What Does “Their Social Skills Are Just Fine” Really Means When it Comes to Children with Language Impairment

As a frequent participant in a variety of speech pathology forums I’ve read through countless “mini scenarios” of SLPs asking for advice regarding various aspects of therapy service provision for children with average IQ and language impairment (characterized by weaknesses in the area of listening comprehension, language processing, vocabulary acquisition, sentence formulation, as well as conversational development.)

When I ask the following question: “What about their social skills difficulties?” I invariably receive the following answer: “Their social skills are just fine!” When I ask: “How was their social competence assessed?” I am invariably told: “The teachers don’t have any complaints, their eye contact is good, and they can keep up with conversations.”

As a result of seeing these and similar statements over and over again from a number of professionals, I decided to write a blog post on this topic due to a certain degree of frustration on my part.

Continue reading What Does “Their Social Skills Are Just Fine” Really Means When it Comes to Children with Language Impairment

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The Art of Asking for Help

Richie is an engaging 9 year old boy, who attends therapy to improve his language skills. He is compliant and cooperative in sessions and is eager to learn new information. There’s only one problem, Richie is unable to spontaneously ask questions and request clarification when he doesn’t understand the presented information. Oh, he’ll sit there quietly, intently looking at the therapist and making perfect eye contact. His entire body posture will scream at you “I am listening to you and I value what you have to say!” But when it comes to answering questions about what he’s just learned, Richie clearly doesn’t get it and has no clue on how to obtain it! He might attempt to answer the questions and stumble half way through before giving up. He might also provide a response completely unrelated to the presented question. But most of the time, much to your frustration, Richie will simply shrug his shoulders and reply “I don’t know”. This is typically when many graduate speech interns and CFs alike will ask him with barely disguised frustration: “Why didn’t tell me before you didn’t understand?” Richie will shrug his shoulders again. Oh, he is not trying to be oppositional, he really doesn’t know! Continue reading The Art of Asking for Help

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Birthday Extravaganza Day Twenty Five: There was a Silly SLP Who Got Stuck to Some Categories

It’s DAY 25 of my Birthday Month Giveaways and I am raffling off a giveaway by Teach Speech 365, which is  There was a Silly SLP who Got Stuck to Some Categories .

This catchy little mini-book activity targets categorization skills. The silly SLP gets stuck on all sorts of things. There is also a complementary silly male SLP [named Sam] which contains the same activities!

Packet Contents:

  • Pre/Post Test pages for data collection
  • Mini-book
  • Sequencing mat and pics
  • Following Directions cards
  • Category Sort pics
  • Creative writing pages
  • Comprehension questions worksheet
  • Silly Sam pages
  • and much more!!

You can find this product in  Teach Speech 365 TPT store by clicking HERE or you can enter my giveaway for a chance to win.
a Rafflecopter giveaway

Links

Organizations:

ASHA
The American Speech-Language-Hearing Association (ASHA) is the professional, scientific, and credentialing association for 145,000 members and affiliates who are audiologists, speech-language pathologists and speech, language, and hearing scientists.

The Childhood Apraxia of Speech Association of North America (CASANA) The mission: To strengthen the support systems in the lives of children with apraxia, so that each child has their best opportunity to develop speech

Selective Mutism nation’s premier resource for SM information, providing a network of families and treating professionals across the world who uniquely understand the struggles of SM

The Stuttering Foundation The Stuttering Foundation provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering

The Cleft Palate Foundation The mission of CPF is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects.

Down Syndrome Education Online Comprehensive information about Down syndrome, including articles, books and scientific papers (Speech and Language Issues)

 The Autism Society The Autism Society, the nation s leading grassroots autism organization, exists to improve the lives of all affected by autism.

The International Dyslexia Foundation
The International Dyslexia Association (IDA) is an international organization that concerns itself with the complex issues of dyslexia.

Websites: 

Social Thinking  

Sensory Processing  

Genetics in the Practice of Speech Language Pathology 

Professionals: 

Speech Language Pathologists:

Nicole Kollenda MS CCC-SLP (offices on the Upper East Side and Mineola) 

Psychotherapists: 

Lydia Shifrin, Bilingual School Psychologist & Licensed Social Worker 
Psychotherapist since 1971, first in the former Soviet Union, and than for over twenty years in the US, as a bilingual/bicultural professional.

Psychologists: 

The Center for Cognitive-Developmental Assessment and Remediation (BGCenter) 
under the leadership of eminent psychologist, Dr. Boris Gindis, the center is composed of independent professionals, specializing with services to the internationally adopted children, who work at the center as well as offsite.

 

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Dinner with Friends or the Value of Interdisciplinary Collaboration and Follow Up

Several months ago I had dinner with two of my colleagues, a pediatrician and a clinical social worker, to iron out the details of our upcoming conference presentation. As time went by we managed to discuss every topic under the sun, yet still the subject of our presentation was sadly not on the agenda. Exhausted from working at the hospital a full day and seeing private clients afterwards, I was getting distinctly antsy as the hand clock kept climbing closer to midnight.

The conversation began to feel more productive when we started to touch base on our mutual clients.   Mostly they wanted to hear from me, since they both share an office suite and I was the only one located off-site. So, even though we all individually frequently conferred via phone regarding clients, that was the first time all three of us got together in the same room to discuss them. Quickly, I rattled off each of my clients’ progress in therapy, until I got to D, and paused.  Oh, don’t get me wrong I am very proud of my work with D, whom I’ve been working with for several years, and who went from being limitedly verbal, severely echolalic, and “autistic like” at the age of 4-5 to fluent complex sentence speaker, fledgling problem solver, and a little charmer by the age of 6-5. Yet something was still bothering me regarding D’s performance that I couldn’t put my finger on. Despite the absence of a particular diagnosis (e.g., ASD) and significant gains, his issues with attention and cognition persisted, and his progress was still halting and inconsistent, even with rigorous language therapy and supplementary academic instruction at home 4 times a week.

In my desperation I have already considered and mentally rejected a number of referrals (“No it doesn’t seem to be a psychiatric issue”, “Yes he can benefit from a neurological but should I refer him to a psychological assessment first, could it be an IQ issue?” I pondered out loud as I shared my concerns with my colleagues.  Both of them haven’t seen him for about 6 months so the clinical social worker immediately whipped out his chart busily looking for appropriate information, while the pediatrician started to frown, searching her memory for an “appropriate entry.”  “Wait a second”, she said, “when I last saw him, during his physical exam I saw brown café au lait spots on his skin that I didn’t like at all, so I referred mom to get some blood work done but I haven’t heard from her since that time. Since you see her every week, can you please ask her to call me ASAP so I could remind her to do the blood test, as the information you are telling me makes it even more imperative that she follow up with the lab work.”

Right away, I became alert.  Though the pediatrician was not stating her suspicious explicitly, through years of working with medical professionals I was familiar with the implications of what café au lait spots can potentially represent and that is neurofibromatosis. It is a neurocutaneous syndrome that leads to benign tumor growths in various parts of the body and can affect the brain, spinal cord, nerves, skin, and other body systems.  In additional to all the medical implications of this syndrome (e.g., tumors becoming cancerous), it can also cause cognitive deficits and subsequent learning disabilities that affect appropriate knowledge acquisition and retention.

To me the situation was clear, no matter what the outcome, as the only team professional in contact with the parent at the time, it was my job to counsel the parent that she get in touch with the pediatrician so she can successfully pursue the recommended course of action.  It may not have been the position I wanted to be in but unfortunately I knew that if this matter was left unpursued, I was left with a whole host of unanswered questions regarding further treatment options for this child.

I use the above example to emphasize the value and importance of working as part of a team to treat the “whole” child.  Therapists specializing in working with children on the spectrum are most familiar with being part of a team, since they are just one of many professionals such as behaviorists, OT’s, psychologists or neurologists who are working with a child.  Being part of a team is also a much more acceptable practice when a child is treated in a hospital or a rehab setting and presents with a complex disorder (e.g., is medically fragile, has a genetic syndrome, etc).

However, in our field, even outside of specialty settings (hospital/rehab) we are frequently confronted with speech or language disordered clients who stump our thinking processes, and who require the team approach (including the involvement of specialized medical professionals).  Yet oftentimes that creates a significant challenge for many clinicians who are working contractually (through an agency) in school settings or in private practice.  Being part of a team when one is contractor or a sole practitioner in a private practice is a much more difficult feat, especially when the clinicians are just striking out on their own for the first time.

Both interdisciplinary and multidisciplinary teamwork is oftentimes so crucial in our field. Working as part of a team allows us to collectively pursue common goals, combine our selective expertise, initiate a discussion to solve difficult problems, as well as to have professional lifelines when working on difficult cases.   Different providers (neurologist, SLP, OT) see different symptoms as well as different aspects of the patient’s disorder. Consequently, different providers bring different perspectives to the table, which ultimately positively contributes to the treatment of the whole child.

Interestingly, many private speech language practitioners have wide referral networks (e.g., pediatricians, OT’s, PT’s and others who refer clients to them) yet when asked regarding frequency of contact with respect to conferences/discussions about the progress of specific clients, many clinicians draw a blank.

So how can we develop productive professional relationships with other service providers which go beyond the initial referral? I’ll be the first one to admit that it is not an easy accomplishment especially which it comes to physicians such as psychiatrists, neurologists, geneticists, or developmental pediatricians.  I can tell you that while some of my professional relationships came easy, others took years to attain and refine.

In my hospital setting I work as part of a team. However, when I first started out in private practice, in a fairly short period of time I ended up having a number of clients with complex diagnoses and no one to refer them to.  What complicated matters further that in contrast to them being referred to me by a pediatrician, these clients came to me first, since their most “visible issues” at the time were speech language deficits. I had to be the one to initiate the referral process to suggest to their parents relevant medical professionals, which needed to be visited in order to figure out why their children were having such complex language difficulties (among other symptoms) in the first place.

So here are a few suggestions on how to initiate and maintain professional relationships with medical service providers.

Start with doing a little research.  You have worked hard to build your practice and your clients deserve the best, so locate the best medical service providers in your area. In the past I’ve had some excellent recommendations from locally based colleagues who were active on the ASHA discussion forums, other client’s parents who already did the necessary legwork, or hospital based colleagues who recommended peers in private practice. Several times I actually liked the initial medical reports I’ve received on a client so much – that I’ve referred other clients to the same doctor.

When word of mouth fails to do the trick, I turn to “Google” to provide me with desired results.  Surprisingly, simply typing in “best _______in _____(name of state)” frequently does the trick and allows me to locate relevant professionals, after browsing through the multitude of web reviews.

Of course depending on the length of client treatment, you will have different relationships with different medical providers.   I have collaborated for years with some (e.g., pediatrician, psychiatrist), and only infrequently spoken with others (geneticist, otolaryngologist, pediatric ophthalmologist).

Typically, when I refer a client for additional testing or consultation, in my referral letter to the physician, I request to receive the results in writing, asking the physician to also include relevant recommendations (if needed). Oftentimes, I also try to set some time to discuss the findings in a phone call in case I have any additional questions or concerns. Of course, I also send the physician (and other providers working with the child) the information from my end (progress reports, evaluations) so all of us can have a more comprehensive profile of the client’s disorder/deficit.

After all, ST’s, OT’s and PT’s are not the only ones who are dependent on information from doctors in order to do our work better. There are times when physicians need information from us in order to move further in treatment such as order specific tests. For example, just recently a pediatrician used my therapy progress report in conjunction with another provider’s, to order an MRI on our mutual client.  The pediatrician had significant concerns over client’s development and presenting symptomatology, and needed to gather additional reports supporting her cause for concern in order to justify her course of action (ordering an MRI) to the HMO.

As mentioned previously there are numerous benefits to teamwork including the fact that it allows for appreciation of other disciplines, creation of functional goals for the child,  integration of interventions as well as “brings together diverse knowledge and skills and can result in quicker decision making” (Catlett & Halper, 1992).

Given the above, it is important that speech language pathologists help to coordinate care and maintain relationships with other medical and related professionals who are treating the child.  This will improve decision making, allow the professionals to address the child’s deficits in a holistic manner, an even potentially expedite the child’s length of stay in therapy.

References:

Catlett, C & Halper, A (1992) Team Approaches: Working Together to Improve Quality. ASHA: Quality Improvement Digest. http://www.asha.org/uploadedFiles/aud/TeamApproaches.pdf

National Institute of Neurological Disorders and Stroke (NINDS) Neurofibromatosis Information Page http://www.ninds.nih.gov/disorders/neurofibromatosis/neurofibromatosis.htm

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Free Literacy Resources for Parents and Professionals

SLPs are constantly on the lookout for good quality affordable materials in the area of literacy. However, what many clinicians may not realize is that there are massive amounts of FREE evidence-based literacy-related resources available online for their use.  These materials can be easily adapted or implemented as is, by parents, teachers, speech-language pathologists, as well as other literacy-focused professionals (e.g., tutors, etc.).

Below, I have compiled a rather modest list of my preferred resources (including a few articles) for children aged Pre-K-12 grade pertaining to the following literacy-related areas: Continue reading Free Literacy Resources for Parents and Professionals

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Alternative Therapies, Herbs, Pills, and Snake Oils or “What’s the Harm in That?”

I’ve been meaning to write this post for some time and have finally decided to do it now due to an increased prevalence of “non-traditional” treatment options available to parents of language impaired children.

More and more unscrupulous or misguided individuals are offering fantastical cures to children diagnosed with the wide variety of disorders including but not limited to: Autism (ASD), Childhood Apraxia of Speech (CAS), language disorders, “Auditory Processing Deficits (APD)“, Dyslexia, and much much more.

What are some examples of controversial products and therapies you may ask?

Below I cite several links (which are in no way exhaustive) for your convenience.

Controversial Autism Treatments: 

In 2013, Dr. Emily Willingham, guest writer for Forbes magazine wrote a post on the topic of “The 5 Scariest Autism ‘Treatments.  In it she described some pretty horrifying methods (e.g., chelation, chemical castration, hyperbaric oxygen therapy) which purportedly promised to “cure” autism. For more information on other controversial treatments in autism click to read this keynote address entitled Evidence-Based Practices for Children with Autism Spectrum Disorders by Dr. Tristram Smith for The Society for Clinical Child and Adolescent Psychology (SCCAP).

Controversial Speech Sound Disorder Treatments 

Dr. Caroline Bowen respected Speech Language Researcher from Australia has a delightfully edifying page on her website (http://speech-language-therapy.com/) entitled: “Controversial Practices in Children’s Speech Sound Disorders – Oral Motor Exercises, Dietary Supplements, Auditory Integration Training”.  On it she thoroughly reviews non-research supported practices to improve children’s sound production including the use of oral motor/mouth exercises, dietary supplements (Apraxia Diet, Nourish Life Speak, Nutri Veda, etc.), as well as Auditory Integration Training (AIT).

Parent‐Friendly Information about Nonspeech Oral Motor Exercises (HERE)

Controversial Treatments for Children with Developmental and Learning Disabilities 

Macquarie University Special Education Centre in Sydney Australia has even developed concise one-page briefings of a vast number of controversial treatments for children with developmental and learning disabilities (selected briefing links are below; the full list of briefings is available HERE):

How to Spot Controversial Practices? 

In her 2012 post entitled: “10 Questions To Distinguish Real From Fake Science“, Dr. Emily Willingham wrote that “science consumers need a cheat sheet … when considering a product, book, therapy, or remedy”. She advised consumers to consider some of the following criteria:

  • Consider the source
  • Determine their agenda
  • Do they use highly emotionally charged language or meaningless jargon?
  • Are they relying on testimonials vs. evidence?
  • Are they claiming to be exclusive?
  • Do they mention words like ‘conspiracy’?
  • Is their treatment promising to cure multiple unrelated disorders?
  • What does the money trail reveal?

The truth is that there’s a lot of pseudoscience out there and as such it is very important for both parents and professionals not to fall into its trap.  In 2012, Dr. Gregory Lof presented the following poster at the ASHA’s Atlanta Convention:  “Science vs. Pseudoscience in CSD: A Checklist for Skeptical Thinking” to “help clinicians evaluate claims made by promoters of products or services to help determine if they are based on scientific principles or on pseudoscience”. An interactive version of the checklist is available HERE, and for the summary based on the checklist,  written by Mary Huston,  fellow SLP and author of the Speech Adventures, click HERE

So what do pseudoscientific practices/claims look like?

  • People place heavy emphasis on beliefs and opinions vs. data, when it comes to therapeutic claims
    • SLPs: “You are wrong! I’ve seen ________ work with my clients!”
    • Parents: “Who cares about your research this _______worked for us so HOW DARE YOU question it?
  • The presented data is based on “expert opinions”, testimonials, and isolated case studies
    • “These ridiculously expensive ‘speech sticks’ at $120 a pop worked for us, Yay!”
  • Data is disseminated via self-published books, popular press, proprietary websites lacking research sections, as well as non-peer reviewed conferences.
    • You might want to review the list of predatory publishers HERE, review the guide of how to spot a bogus scientific publication HERE,  and if you ever find yourself reading anything on this website, I suggest you close your laptop as fast as you can and possibly put it into another room for a while (Read Why – HERE).
  • Treatment sounds like a magic potion since it works on a wide range of disabilities, appeals to fears and wishful thinking, preys on the desperate and uses hyperboles (“miracle cure”)
  • Use of disdainful comments against researchers because “only clinicians do real clinical work”coupled with over reliance on clinician’s experience and subjective judgment since it’s the “best way” to determine effectiveness
    • “I’ve found ___________ to be highly effective with gazillion clients”.
  • Lack of change in practices despite a veritable mountain of evidence to the contrary
    • “Your child NEEDS oral-motor exercises, NOW, for his speech to get better”
  • New terms are created to mask use of disproven pseudoscientific practices

Why do we keep believing when all the evidence points to the contrary?

Because our brains become emotionally attached to ideas. This is further supported by the construct of two biases.

Confirmation bias – our tendency to look for/interpret information in a way that confirms our beliefs by “cherry picking” the evidence that supports what we believe in and ignoring the evidence that argues against it.

Disconfirmation bias – when facing with evidence which directly contradicts our beliefs we will criticize and reject it because we do not want to be wrong.

So now let’s get back to talk about the title of this post: What’s the harm in that?” 

While I am accustomed to seeing the variation of this statement on parent forums, I was surprised when I learned that it’s popping up quite often in some unexpected places such as during IEP meetings or during doctor visits (as reported to me by some of my client’s parents).

So I wanted to take this opportunity to explicitly point out what the harm in these alternative practices could be, ranging from the obvious to the hidden.

For starters some of these ‘therapies’ could kill!

  • Over the years there has been a number of reports regarding deaths from controversial autism treatments including chelation and GcMAF injections.

Even if they don’t kill you they can cause some nasty side effects!

  • To illustrate, Nourish Life Speak Nutrientswhich were prescribed to children to “increase their language output or to make them speak better”, were so loaded with vitamin E (way above the legal amount), that a number of children who were taking them experienced significant seizure activity.

It’s going to cost you!

They create false hope!  

They can create a sense of  bitterness and hopelessness!

  • Ever spoken to parents who have tried every alternative treatment possible and have subsequently given up? If you haven’t, I assure you it’s not a pleasant or productive conversation.  At best you will hear a lot of vitriol and accusations and at worst they may actually start a forum thread or a website bashing effective treatments such as speech language therapy because of their negative experiences.  When you believe that you have tried everything and it’s still not helping, you feel defeated and lost and as a result tend to attack blindly anyone who attempts to assist you because you’ve stopped perceiving it as assistance but rather as just another scam.

They delay effective research-proven treatments! 

They affect self-esteem and self-efficacy! 

  • Now enough about parents and professionals. Let’s actually take a moment to talk about effect of these alternative practices on the most important people in question: the children who are on the receiving end of it! Let’s talk about all the negative effects that can be incurred by them by undergoing these useless treatments time after time.  And no I am not actually talking about the hugely dangerous treatments, which can cause physical harm or awful side effects.  I am talking about the relatively benign treatments of “vision therapy”, “memory training”, etc.
  • To illustrate, I work with are very bright 11-year-old boy with significant reading deficits and an extensive history of reading disabilities in the family.  This boy’s deficit is in the area of reading, there is no doubt about it! He knows it and it’s very acutely aware of it.  However, at the advice of well-meaning professionals he was taken to a behavioral optometrist, who told his mother that his issues with reading are due to visual processing deficits (despite the fact that his ophthalmologist ruled out any vision difficulties and declared his vision to be 20/20).    It was then recommended that he undergo a costly vision therapy program in order to improve his “visual processing”.  Guess, what his first words were, when I saw him in my office for reading intervention?  ‘I went to the doctor who told me that I have problems in my eyes and that I need to stop reading!  So I can’t do any more reading because of my eye problems.’   Imagine how he will feel when after several months of costly therapies there will be no functional improvement in his reading skills, since the only thing which can improve his reading abilities is the actual targeted reading instruction!
  • Our students are very acutely aware when something is not working. Just like us they get increasingly frustrated after being dragged from one professional to another, after ‘suffering’ through one controversial treatment after another with no respite in sight.  Imagine what havoc it begins to wreak on their self-esteem and their self-efficacy (belief in own abilities to complete tasks and reach goals), when they keep undergoing these treatments without any improvement? All the negative self-talk they will use? Here are just a few statements I’ve heard over the years: “I am so stupid”; “There’s something wrong with my brain”, “I am not good at this, etc.) Instead of building them up these alternative therapies and treatments will not just tear them back down but may potentially cause behavioral and psychiatric effects to boot.

There you have it: that’s what the harm is!  The toll of these quack practices can be very significant and can go far beyond the financial.  So the next time someone utters the statement: “What’s the Harm in That?” consider the above information in order to make the informed decisions regarding the treatment for the most vulnerable parties involved: the children in your care!

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Guest Post: Forming and Cultivating Positive Relationships with Middle School Students

Today’s guest post on working with middle school students comes from  Zoya Tsirulnikov, MS CCC-SLP, TSSLD , an SLP from the NYC’s Department of Education. 

The middle school population is fun and exciting to work with, however  it may prove to be quite challenging for some SLPs. This is my fifth year working for the New York City Department of Education at the Middle School level. I started out working with high school and elementary school students and quickly realized that this particular age group is different from its younger and older counterparts. Whereas at the elementary grades, students are learning new skills and concepts and building the foundation for expository text, the middle school students are expected to have bridged over to more rigorous text. Therefore, the achievement gap is very noticeable since students are tackling more de-contextualized discourse. Continue reading Guest Post: Forming and Cultivating Positive Relationships with Middle School Students

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App Review and Giveaway: Between the Lines Level 2

I enjoyed reviewing  Between the Lines Advanced so much that today I am bringing you an intermediate version of this awesome social-pragmatic language app called: Between the Lines Level 2, which also focuses on targeting: Interpretation of vocal tone, Recognition of facial expressions, Interpretation of body language as well as Recognition of idiomatic expressions and slang, just on a less advanced level and in a less challenging format.  The app uses photos and mini videos of people in a variety of real-life dynamic social situations to teach social skills. Continue reading App Review and Giveaway: Between the Lines Level 2